Support and resources

As patients and caregivers, you can play an active role in the community while making the best choices for yourself. This starts with education.

Support

Find a local support group, the closest haemophilia/bleeding conditions treatment centre, and patient advocacy groups using the Global Treatment Centre Directory at the World Federation of Hemophilia Web site.

You can also read the newsletter Hemophilia World, published by the World Federation of Hemophilia.

The World Federation of Hemophilia also provides basic information about bleeding conditions other than haemophilia, such as von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.

Resources

FAQs About Haemophilia

Read some FAQs about haemophilia and discuss any other questions you may have with your doctor.

FAQs About von Willebrand Disease

Read some FAQs about von Willebrand disease and discuss any other questions you may have with your doctor.

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