For caregivers

Haemophilia and Children

With adequate treatment, most children can live active lives. However, keep in mind that, while injury prevention is important, it is also important to not overprotect children with haemophilia.

Talking to children about their disease can be beneficial. If properly informed and educated, children will understand their condition and will be able to work with their physician.

Haemophilia and Home Care

Caregivers and family members who have undergone adequate training by their healthcare team can start home care when their children are at a young age. As the children get older, they can learn self-infusion with the support of their family.

Tips for Caregivers of Children with Haemophilia

Be open and honest with your children about all aspects of care

Talk to your doctor about home care

Encourage children to engage in normal daily activities

If your child experiences pain caused by venous access, application of local anaesthetic spray or cream at the site may be helpful. However, please consult with your healthcare provider

Learn From Others

Learning that your child has haemophilia can be scary. Therefore, talking to others—friends, parents, healthcare professionals, and other people with haemophilia—can be a great comfort. Contact a haemophilia/bleeding condition treatment centre to find out if it has information about local support groups and other haemophilia/bleeding condition community groups.

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